Friday, 23 January 2015

Migraines 2015

Me, once the worst was over... Big throbbing veins either side of forehead still evident
So this week was FUN. I say 'FUN', I mean 'STAB ME IN THE HEAD IT WOULD BE LESS PAINFUL'.

I posted previously about migraines last year, after a particularly nasty spell took me away from the blog for days.

This week my vile, throbbing,head was mixed with a flare-up of IBS, something that Jane from BBB suggested may in fact be stomach migraines (I'm looking into that). WHO knew that was even a THING? 

Anyway, whilst I'm now on Day 4 of the fading symptoms/hangover I thought I'd update the little list of things that have helped me... and as always, please leave your suggestions below for fellow sufferers. Migraines were a gift to me after I had my first child, previous to birthing out the sproglets, I never had so much as a flutter of a headache. Swines. 

What helped?
  • Warm showers. Letting the heat gently pound the back of my neck while standing in the dark bathroom was strangely soothing.
  • Bananas - as always. You really need to eat when you take things like Sumitriptan (well I do anyway), and bananas also give you a potassium shot. I know they are not the highest potassium-containing foodstuff, but when you can barely move you're not about to cook up a sweet potato/bean/spinach casserole. People who try and preach to migraine sufferers that there are foods with higher potassium levels than bananas are missing the point of what being incapacitated by your throbbing, stabbing head actually means. *digresses, goes back to post*
  • Water - tons and tons of water. Sparkling for me, normal water makes me more nauseous when the head is killing.
  • Magnesium supplements - to ease the throbbing and relax the muscles - and the brain ache!
  • Ubiquinol - I mentioned this in my January pillbox post and hadn't taken it for a few days - as most people say CoQ10 helps, this could also have been a factor... *never goes without again*
  • The Dark - obvs.
  • And.....

these gems. Or should I say 'Chewing' - and then say these gems...

I bought these Bounce balls a couple of weeks ago to snack on during those days when I'm running around and don't want to resort to grabbing rubbish on the go.
I hid them* from my older boys (the weight-lifting, body-building, food-hoovering duo) under my bed and completely forgot about them. This week, during the flare-up, I dropped my pillbox on the floor and whilst scrambling around in the dark and swearing like a navvy I found them!

Turns out these things are a GODsend. The chewing works wonders (who KNEW?) and they give you the feeling of being full up so you don't have to worry about taking meds/feeling nauseous. I wish these had been around when I was pregnant...one a day at lunchtime meant I wasn't hungry so could focus on just getting rid of the headache...

Anyway, that's my little tip for the migraine crew. If you suffer from them, I hope it helps, if you don't suffer from them, try wrapping gaffer tape around your head really tightly 6 times, then stabbing yourself repeatedly behind your right eye for 6 hours, and remember to vomit intermittently. :)

Oh and I got the Bounce balls from Whole Foods, but I'm sure you can get them in Holland & Barrett etc... 



*Yes, I hide food from my children. When your kids eat 6 chicken breasts 'as a snack' after getting back from the gym because they're 'starving' and then say 'what's for dinner?' you'll hide food too. 
I also hide beauty products, clothing and remote controls when necessary. 





55 comments:

  1. I am actually home from work with a terrible headache right now! Thank you for the helpful tips Caroline *scrabbles for a banana*

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  2. I take 5HTP for Fibromyalgia and on the bottle it says it can also be used for migraines. It apparently reduces the severity and duration of migraine headache when taken as a prophylactic.
    Worth a try. Hope you get some relief soon.

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  3. I'm ao glad your starting to feel better. You have my full sympathy! Migraines were the bane of my 20s and early 30s and back then (I'm 56 now), there wasn't a lot for medication or help beyond the sort of pain killers that left you feeling zombified. Thank goodness I seldom get one now and when I do they are nothing like as severe as they once were. I also have Sumatriptan which works a treat without the horrible side effects. Your remarks about your boys made me laugh. My son, who's 32 now and 6'7", was an eating machine as a teenager. In fact he still is, but now trying to keep him fed is my daughter in law's problem. LOL!

    Take care of you.

    Ali x

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  4. I've had migraines since I was 16 and agreed - they are a total b-word. I found that taking daily doses of Co-Enzyme Q10 really helped as a day-to-day thing and after a lovely, lovely migraine I drank coconut water.

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  5. I usually only get a migraine two or three times a year but when I do it is truly awful so the tips are great, No apology needed for the hiding of stuff from children, I regularly hide chocolate, makeup and expensive bubble bath from my 13 year old daughter with no pangs of guilt!

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  6. Have you read about the new migraine surgery? I've had migraines for over 20 years, but when I hit perimenopause they took on a whole new life thieving meaning lasting for 2 to 6 days and keeping me in a completely dark room, no noise, no nothing. For years my dear husband has had the pleasure of stabbing me in the behind with a cocktail of two injections (Imitrex (sumatriptan) and Tordal) The two together had worked quite well - they would put me to sleep for 3-6 hours and then the pain would be gone though I had to be very careful to not stress or strain for 24 hours or the beast would return.
    Alas, with peri-menopause, the shots were needed so often that I developed serious scar tissue all over my behind and while they still controlled the pain, they could no longer end the migraines.
    I’ve been to Mayo clinic for migraines 3X, (also have IBS by the way) and have gotten botox -back of the neck, the head & forehead - (not in cosmetic areas unfortunately) - I can't say it's been all that effective.
    Enter my neurologist who told me about a relatively new procedure developed at the Cleveland Clinic by a group of plastic surgeons who had noticed that women who had brow lifts who suffered from migraines reported a drastic reduction or even ELIMINATION of their migraines post brow lift surgery!
    One of the surgeons involved in this research. Dr. Ahmed Afifi, was now here in Madison at the Univ of WI Hospital! I saw him and went through the number of tests and appointments necessary to be approved for the surgery (including knowing you will be able to cope if it doesn't work...a rare occurrence, but possible). Only a small percentage of people are approved for the surgery - those that they feel it has the best chance of success for. They determine that by testing you with nerve block injections of Marcane given in the crease of your eyelids (yuck but not as bad as it sounds) and the back of your head at the base of your skull. You don't have to have a migraine when you get the injections. If the injections "work" (I won't say what "working" is since they don't tell you in order to eliminate placebo effect), it is highly likely the surgery - which severs the same nerves that are cut in brow lift surgery etc (so basically you get a bonus brow lift) - will be successful at drastically reducing or even totally eliminating your migraines!
    I was, to my great joy, approved for the surgery! While insurance often covers this surgery for chronic migraine sufferers, my crap insurance said it was considered "investigational" and wouldn't cover it. I cried for days....to find out that something could give me my life back, go through testing, be approved as someone it would very likely work for and then find out that unless I could come up with approx US$20,000 (he discounted it to that for me b/c of the insurance bs)...heart wrenching. He may as well have said it was $20 million since my husband lost his job of 23 years 2 years ago and I have no living family to take a loan from...well, I can't get the funds. Maybe someday. In the meantime, I can get some different nerve block injections every three months that have reduced the length, severity and frequency of the migraines. While they are still extremely disabling and totally unpredicatable...even taking the pain down from a 9 to a 6 is something great. Making it so that I don't vomit time after time during a migraine is something.
    This post was VERY long, but so few people are aware there is actually the possibility of a CURE if not a drastic reduction in the frequency/severity of these monsters, I want to get the word out. Look up Dr. Ahmed Afifi and the others or do a google search of "new surgery for migraine sufferers" to find the research. Hopefully someday the Gods will rain down $20K on me or my insurance company will realize that what these 20 injections per month cost them is much more than the surgery...but until then, I hope this helps some readers of your blog as well as you Caroline!

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  7. Caroline, or anyone else, I live in Miami, FL and I have allergic reactions to zinc oxide. What daily sunscreen can I use on my face?

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  8. Hi caroline, somebody told me oranges give them migraines. So I have been trying t stay away from oranges whenever I see a migraine coming. It's worth a shot. I noticed that some strong smells make my migraine worse. So I try to stay away from anything that has strong scents,

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  9. I've only had one serious migraine in the past 6 months and it was terrible... felt like I was about to pass out! It's the worst because apart from the pain, it interferes with your life and work. Thank you for the post Caroline.

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  10. My younger brother used to suffer extraordinarily severe migraines as a child. Once a month, from the age of about 6 onwards, he would get a visual disturbance and from that point onwards we had 30 minutes to get him somewhere safe. He would be in unbearable agony for several, projectile vomiting, basically just completed incapacitated. He would need to sleep for about 24-36 hours after an episode in order to feel normal again. It caused our family many problems when he got one whilst we were travelling or at school etc... None of the pills or sumatriptan appeared to work. He went to a neurosurgeon who explained that these kind of severe migraines are very similar in effect to epilepsy in the way that the blood vessels in the brain react. So after several experiments with various types of medication, none of which worked, he was prescribed Topiromate, an anti-epilepsy drug. Well it worked. He never had another. However, the side effects of the Topamax (often known as Dopamax for this reason) were quite profound. He was constantly fatigued and as an already skinny lad proceeded to lose his appetite and lose a lot of weight. Even so, this seemed a cost worth paying to avoid the monthly agony of the migraines.

    At the age of 18, having been on the Topamax for nearly 10 years, he slowly weened himself off it, and has notrelapsed into the migraines (fingers crossed). He is now a very healthy and happy 25 year old. However, he is convinced that the side effects of the Topamax are responsible for his underachieving at school.

    So whilst there is something you can do for these incapacitating migraines, it comes at a price. I hope that are able to find a solution to your migraines Caroline, they really are a curse.

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  11. Bounce balls are awesome, never knew they would help with migraines though, will have to try this as I suffer too :( Definitely inherited this gene from my own mother. My mother also hides food. .... usually the chocolate stash... haha!

    xxx

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  12. Very funny about you hiding food and other items from your children. No matter what my mother hid from us as children we always found it. It was usually by accident because we were curious, nosy beasts...meaning when we walked by something, whether it pertained to us or not; we opened it, looked in it, under it or over it. And score! Mother's hidden items from children would be found. Drove her mad on occasions. We are making amends to her as adults now. So all is pleasant. I am glad you are feeling better.

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  13. Hi Caroline, I've only just found your blog and so far I'm loving it!
    I've had occasional migraines since I was 13, and so far the best way to recover has been sleeping in complete dark and quiet (and no smells, someone cooking etc). Which is quite hard to achieve when you live with other people or if you have pets who are used to sleeping in the same bed as you, last time I had a migraine I switched bedrooms 3 times to escape my 2 cats and my dog :/

    I hope you'll feel better soon! :)

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  14. You can buy those bounce balls from Ocado. Just so you know!!!
    Hope you're feeling better. I have a request . . . a "topping up of skincare in the middle of the day" post. Sometimes I find I could do with a boost at some point in the day, especially at this time of the year. (January is bloody shitty by the way). Some product tips and recommendations would be very helpful! x

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  15. Thanks for the tip about Bounce balls - could be useful as a snack for this pescetarian who can't eat wheat!
    Re: migraines, I will share with you that since I've been taking Lyrica for GAD-type illness, the incidence of my migraines has reduced dramatically, though the odd one still sneaks in if I get overtired, after stress has lightened up or if I get too hungry in Selfridges (ultra triggering, being noisy, brightly lit and with random clouds of fragrance - if only it didn't stock such stellar products, I'd shun it completely). Sadly I don't believe Lyrica (pregabalin) is licensed in the UK for migraine alone.

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  16. Hi I have IBS, gave birth 10 weeks ago and have had a few migraines since (rarely had them before). I do yoga at home and it really helps both problems.
    My husband swears by putting pressure on the point between your thumb and forefinger and massaging it until the pain dissipates. It definitely helps......may be a bit psychosomatic.

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  17. I am wary of the bounce balls as the second ingredient is "Brown Rice Malts Syrup" which I suspected was basically sugar. Are they healthier than I thought? Not questioning their migraine helping powers but was just wondering as snacks more generally if they are actually healthy.

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  18. Hello Dear, Sorry you've had a lousy week. As a fellow IBS and Mirgraine sufferer I empathise! Speaking only about head migraines (looking forward to your stomach migraine post - because my head migraine cocktail is not helpful for sensitive stomachs) when the triggers hit - halo of light around everything, sensitivity to noise, and just a generally woozy feeling (not in a good way) I have a routine I follow that works about 80% of the time and allows me to function (albeit not at 100%). When I immediately notice mirgraine symptoms I pop 3 Excedrian Migraine tablets and drink (ok chug) the strongest cup of coffee I can stomach. The tablet/coffee combo allows me to skip the agonizing portion of migraine festivities and skip directly to the migraine hangover feeling. But, at least I am not bed ridden as I have been previously. If you try this combo, I hope it delivers quick relief.

    In other news - I am anxiously awaiting the delivery of Sunday Riley's Luna - I do hope there is a parcel waiting for me by day's end. And re hiding food from the children: It is common practice in my house. I have it down to good old fashioned Darwinism. Love your work!

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    Replies
    1. To digress from migraines if I may........the coveted Luna has arrived! Retnoids take me away!

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  19. Feeling very sorry for all of you suffering from migrains.
    hope you are feeling better.

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  20. Another migraine sufferer here, I've had them since age 15 and I'm 36 years old now. Just wanted to add to what another commenter before me said about Topamax.. after suffering from deadly migraines for most of my adult life I was once taken to the ER during a particularly severe migraine episode. Well that night there was a neurologist doctor there who suggested I try Topamax, anti-epilepsy drug that has proven to help many migraine sufferers. Well I've been on Topamax for probably 4-5 years now and it's drastically reduced both the frequency and severity of my migraines. I still get them occasionally but Topamax has definitely given me my life back. Thanks for sharing your tips and good luck.

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  21. Just want to say thank you so much! My grandma has been suffering from migraines for the past few weeks and has been very ill. She thought and the family thought she was having TIA's at first, she had one where she was trying to speak and couldn't. Her words weren't making any sense. She's never had migraines before and was obviously very frightened about having a stroke. She is 90 and her health has been deteriorating over the last few weeks as a result of the migraines and being taken off a lot of medications that have been found to be damaging her kidneys. Sorry for the long comment but I can't believe the coincidence of you talking about this. I will pass on all your advise and hope she will improve as a result.

    Thank you,
    Abi

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  22. Hi Caroline, yes migraines are an absolute nightmare. I know exactly how you feel. Mine always seemed to be hormonal, especially with menopause. And the stress made my IBS flare up too. Hope you are feeling much better, Kathryn x

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  23. My migraines have gotten lighter after menopause. They used to last 72 hours on the nose and I couldn't eat or move the entire time. Now I can knock them down with a couple of Tylenol if I catch them right at the beginning. If not, Maxalt is my drug of choice, although it knocks me for a loop! I'd love to try the balls, but it doesn't look like they're available in the U.S. Glad your feeling better!

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  24. nothing worse than a real sore head!!

    Lx
    Http://workingmumy.blogspot.com

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  25. Try sauerkraut juice, some people drink it for hangover.

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  26. In Turkey people eat olive paste for migraines . It helped me a bit too !

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  27. Thank you, thank you, thank you. I will try all of this.

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  28. I'm glad to have stumbled here. I am not diagnosed with having migraines but I believe I do suffer with them. Every other day my teeth ache and the back of my head aches and boy oh boy my neck and back and shoulders carry a lot of stress. I eat a banana every day in general but I might just save them for when I get a headache! I find stretching helps me a lot x

    Leannewinters.blogspot.co.uk

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    1. I was going to make a general comment but then I saw yours. Despite Caroline's experience, bananas can actually be a migraine trigger, as they are for me. Actually almost any food can trigger a migraine and that is why a migraineur must keep a food diary at some point to figure out her triggers. I would urge you to skip the bananas for a week or two and see what happens with your migraines. You can get lots of potassium from orange and tomato juices. I apologize for posting as Anonymous but google account now posts my full name otherwise. Good Luck! Nina R.

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  29. I find that nothing is as magical as coke (coca cola that is...) during a migraine attack, not even heavy painkillers!

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  30. Electrolytes help me, I normally try Gatorade or coconut water. I hear Botox helps too. I only get one about once a quarter. When I figured out my food allergies and my auto-immune disease, medication and the right foods went a long way.

    I didn't know I had food allergies either, so look into getting tested!

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  31. Hi Caroline, have you lost weight? Your face looks slimmer.

    Anywho...

    Your videos, and subsequently your blog, is a recent discovery for me and I have to say you are HILARIOUS. Just wanted to give you a suggestion regarding vitamins/supplements. I have not found better ones than Andrew Lessman's ProcapsLabs. They are high potency, free of additives and are truly research based, not just claim to be. Andrew used to be a food and drug lawyer. His supplements are expensive because they are made without any compromises, but if you can swing it they are well worth it. Check it out, but it's a US company.

    Also, if you need a really good moisturizer Shiseido's Bio-Performance Advanced Super Revitalizing Cream is hands down the best. It's for Normal/Combo or dry to very dry skin, and a little goes a long way.

    Keep up the funny. :-)

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  32. Sorry, Caroline! Hope you continue on the mend!

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  33. Hi Caroline, thanks for sharing your remedies. I also suffer from migraines and a few years ago I started to use an old remedy passed down from my Chinese great-grandmother, which helped alleviate the pain. Dip the head of a match into some Tiger Balm and use the tip to apply pressure (poke) to areas of your head where you need soothing. Originally, my G-grandma did this on specific pressure points (like acupuncture), but that bit has been lost to us so I just poke wherever it hurts. Works even better if you can get someone to do it for you and then do a mini head massage with the balm. Strangely, I always feel sleepy afterwards and wake up generally headache-free. Give it a try and hope you feel better! Maggie x

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  34. My mother, now 71, has suffered dreadful migraine attacks since my younger brother was born 32 years ago. She was bedridden for about 2-3 days every month amd had to quit dairy (apart from milky tea), chocolate, oranges, peanuts, and alcohol. Prawns and chinese would also affect her (maybe the MSG in curries). Finally, her life was revolutionised about 10 years ago when a doctor got her to try Maxalt Malt. Whenever she feels one comimg on she takes this powder and it pretty much keeps an attack at bay - more of a soft headache. Try it! @deborahwise

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  35. Migranal. The prescription nasal spray. Only thing that worked for me - and I tried it all. Toward the end of perimenopause (36-55: migraines were the worst!) I tried Topamax for a couple of months. Broke the cycle. And now I rarely get a headache. Also a side dish of acupuncture.

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  36. My last migraine was in July, and was the worst one I ever experienced. I ended up in hospital after the left side of my body went floppy and numb and when the tests for a brain bleed came back negative, I was told that my new, terrifying symptoms were part of the migraine. I learned after that the sister of a friend is completely paralysed by hers for a short time. Who on earth knew they could do THAT? Aside from sleeping more than a cat I didn't know how to alleviate the 'hangover' so thank you so much for these tips. Also, your description of gaffer tape / stabbing / vomiting is spot on :) x

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  37. Hi Caroline, I am from a long line of migraine sufferers in my family. I'm 49 and since hitting menopause 3 years ago due to treatment for Breast Cancer they have stopped. However my daughter has had migraines since she was 3 she is now 23. She takes Imigran tablets ( Only available by perscription) when the Migraine starts and manages to stop it within 30 minutes. She also takes Stemetil for the nausea, again only available by perscription. She has tried natural remedies, acupuncture you name it she has done it all. Fortunately these two medications have been her magic pills. Have a chat to your Dr about them. Wishing you all the best, Effie x

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  38. Another migraine sufferer here! Used to be really frequent when I was younger but in my 30s they come less often but much more severe. They are horrific! The pain, the blindness (I lose my sight completely when it's at its worst), the nausea and vomiting, light sensitivity, inability to move... Thanks for the tips, which I shall copy out and keep on a little card somewhere for the next one. Because mine aren't regular my doctor won't prescribe anything for them so I'm left with OTC painkillers which just don't cut it :( Needless to say my doctor is not a migraine sufferer and just refers to them as "bad headaches". One thing I do find helps is to cocoon myself quite tightly in a blanket, head and all. Something about the way that supports my body is quite soothing even if it doesn't actually shift the head pain.

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    1. You need to change your doctor, or insist on a proper migraine remedy like Zomig. I really don't think you should be suffering like that when there are drugs that can help you. x

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    2. Try Acupuncture. It's really effective for migraines.

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  39. Thank you for this Caroline! I just read it aloud to my mum who is a migraine sufferer as well... now to get those protein bars and Ubiquinol...

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  40. Bless your heart. Sorry that you had a migraine. Have you considered being checked for celiac? It might be worth a shot. I love the great information you share. Best wishes from Texas.

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  41. Bless your heart. Sorry that you had a migraine. Have you considered being checked for celiac? It might be worth a shot. I love the information you share. Best wishes from Texas.

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  42. I get stomach migraines! I'm only 21 but have had them since I was a child - they actually used to be worse but I rarely get them anymore. They're really tied to my anxiety/stress levels - often I would not even know I was anxious about something until the migraine hit. Antispasmodics work well - I usually take colofac.

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  43. I feel sorry for you Caroline, this sounds horrible. I wish you a speedy recovery and to have you at 100% soon and back in the blog - I always miss your posts! :) Have you had migraines since always or did they worsen over the last years? If recent, have you had them checked by a specialist? It may be a sign of something worse that maybe needs addressing?

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  44. Thanks for the tips :) will be trying them out the next time I get a migraine (which is hopefully in a very long time!!)

    Cheryl
    http://daisycandle.com

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  45. Migraines suck. When I feel one approach taking ginseng helps me, you can get bounce balls with ginseng in. If I'm being sick then the forehead stick helps. Its a topical painkiller so you can put it where the pain is and you won't throw it up as it doesn't go near your stomach. Sucking ice cubes as well, you will rehydrate (slowly) through your mouth. So you can give your stomach a bit of a rest. Hot showers in the dark, yes been there.

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  46. oof. migraines are the worst. i'm due to get botox in my brain to treat my migraines because they are so severe and i am immune to all migraine medication. i hope you feel better. i have been getting them for almost 25yr.

    xo

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  47. Acupuncture fixed my migraines. Took about 6 visits. Still get the occasional headache and neck ache but it's about a 3-4 rather than a 9-10.

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  48. I sip Lucozade original as water makes me feel sick. I try and limit my time on a computer as the screen on these and tablets/ phones can trigger mine. Hate wasting days in bed. Some friends have recommended Feverfew as a preventative. Bowen therapy is also good.

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  49. This comment has been removed by the author.

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  50. I can't wait for Alsuma EpiPen to be released. my doctor gave me couple of samples with the instructions to use one when a migraine comes on super fast or is particularly bad. I'm scared of needles but I was willing to try it when the only alternative was guillotine. Or should I say my boyfriend offered to stab me ( looking back he seemed to enjoy it more than appropriate, hmmm 😳). It was amazing, pain was completely gone within 15-20 minutes without the side effects I get from sumatriptan such as sore neck and shoulder muscles, tension etc. It's a miracle

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  51. Hope you head is feeling better; that is the exact January I have been having as well. Bloody weather swings!! I tried Botox specifically for migraines as injected by a Neurologist and it didn't help me at all, but I know it does help a lot of people. Specific things I know cause migraines for me and several others include citrus, chocolate, excessive caffeine, nuts, cheese, and red wine (you know...the good things in life:P). A cold pack on my neck always helps. That and peppermint oil. I am super sensitive to smells during my migraines normally, but a ring of peppermint oil around my hairline really helps me and several others I know. A few friends have had luck with regular doses of Feverfew tablets, but they also did nothing for me. I suspect they are sort of like St. John's Wort for depression; it helps if you don't have an overly severe, extremely persistent case. Aside from relocating - my migraines were that bad where I used to live - the only thing that has markedly helped my headaches in terms of frequency is actually a daily dose of a blood pressure medication which has an off-label use of headache prevention. Every time I go to a new pharmacist they ask me about my high blood pressure and I have to explain that it's really headache that I have as that off-label use is quite uncommon.

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